Week 3

3 Weeks Old Today!   Elliot is clocking in at about 1lb, 13 oz's. 

The little guy sure kept us moving this week, we have officially experienced the "roller coaster" ride everyone in the ICN talks about - not sure it's a ride we actually want to be on...but we are....and I think we've been taking it in stride. 

This week we have delt with all sorts issues but I think we managed them well and we seem to be on top for the moment....we will see how long the little guy let's us stay on top!  We had one under inflated lung and one over inflated lung both on the same day - so Elliot became the proud owner of a jet vent...for a total now of 2 vents, we think he just wanted one more machine with additional bells and whistles attached.  We have also been working on getting his intestine tube out so he can start having some milk - they gave him a drink to follow the path but now Elliot is having some trouble getting the drink out...hopefully things get moving for him over the next 24 hours!  His blood pressure was a little low but that seems to have corrected itself and he even had a little blood transfusion to help him get some additional juice! 

BJ and I continue to try and laugh, but this week also showed us how quickly things can change and how important it is to celebrate all the little milestones along this crazy adventure!  We are so lucky to have each other to lean on despite if we have a "good day" or a "bad day".  Today we looked at photos from 21 days ago when Elliot was born and we can actually notice a difference in his size...amazing to the two of us since we spend about 12 hours a day watching him and he usually looks the same! 

This week in art therapy land we made shadow boxes and learned know to knit hats by using a hat loom - the record number of hats made by a parent of a baby in the ICN is 70 - BJ thinks we can totally make more than 70, especially if we are here until November...we will end the week with a total of 9. 

Again we thank you all for your continued support, we couldn't continue to fight every day without the our family, friends, loved ones, and our wonderful Dartmouth family that watch us day in and day out and are on this adventure with us!